From the beginning I have not had much luck with finding a professional mailing list associated with autism. I thought this task was going to be an easy one because autism is an immense topic that is everywhere in the media. I was completely mistaken however, because my attempts to join mailing lists were quite unsuccessful. I went to several sites looking for autism lists to join. I even “googled” it and still I had not luck! The lists I tried to join simply would not let me do so as if they did not exist. Finally I thought I found several useful mailing lists when only to find they were newsletters and discussion forums-not professional lists. By this point I was becoming desperate, I would be willing to join any mailing list. Luckily, a friend was already subscribed to an autism mailing list and she gave me the address to try to join myself. I emailed the head of the mailing list telling them my story and requesting to join the list. Soon I received an email stating that I had been added to the list. Finally my frustrations were over…I thought. The address of the mailing list I subscribed to is AUTINET-FORUM@LISTSERV.HEANET.IE. The list owner’s name is Peter Wise. This electronic mailing list is covers Autism Spectrum disorders (especially Asperger’s Syndrome) and the discussion of autism related topics. Since I joined this list at the beginning of the month, I have only received three or four emails. This means that I am sent an average of one post a week. Honestly, I was very disappointed because I hope I would receive at least double that. I know that many people were annoyed about receiving too many emails, and I feel annoyed that I did not receive enough emails that were useful for the multi genre research project (MRP). Two of the emails I received discussed my addition to the list and guidelines that are involved. The other two emails I received actually discussed issues about autism.
Think about the mailing list as a community. Describe the community. I would say that the people in the “community” are not very close or helpful to each other due to lack of communication and interaction with each other. I was very surprised of the lack of emails I received from the community. Autism is such an epidemic that I anticipated I would be getting emails on a daily basis. What do you know about the community? I believe there is some interaction taking place the March of Dimes and other autism walks and related events. I also think that some of the people gather at conferences and other events related to research on autism, such as meetings on the discussion of possible causes for the disorder since this is such a major piece of this puzzling disorder. I did not read many questions on the list, mostly members presented with comments on autism and interesting topics that are in the media. A posting that comes to mind is one that talks about studies on childhood developmental disorders and how they might be related to autism. Another post I recall involved jobs available for people with autism. This email was very helpful for viewers who have autism and family or friends trying to help their loved one with autism, get a job.
What do you know about the people in the community?From the emails I have received, I know that many members of the list are parents who have children on the autism spectrum. Some of the parents even talked about their children having a duel diagnosis which means that other conditions co-occur with the autism. I also know that the list owner, Peter, sends numerous emails out to all the members. I am unsure if he has family or friends with autism. He may also just be interested in the disorder or a professional expert on the disorder. What is the purpose of the community? I think the purpose of this mailing list seems to involve conveying facts and being informative. One way to be informative is to provide helpful and useful links that give information on various aspects of autism. Another purpose is also to provide ways for people to get in contact with someone in order to answer questions or give help and support. When I joined this list, I was informed that it involved aspects of Asperger’s and other forms of autism.
How do you know that?It seems like questions are never asked and members often do not provide comments and opinions to each other. For the most part members are given suggested links to helpful sites for further information. Also, members are given specific telephone numbers or email addresses in order to get in touch with certain people. For example, when the owner sent the message about jobs for autism he sent information about specific companies, as well as numbers and email addresses in order to contact them. I know that this list involves various aspects of autism because it says so when you join and each email I have received has involved the disorder in some way. Does the community fulfill its purpose? I think the list fulfills the purpose of discussing various aspects on autism; however, I was informed that there would be an emphasis on Asperger’s syndrome and I do not see this occurring.
Why or why not?
I have yet to receive an email or information on that specific disorder. I also feel that this particular list is nothing like a support group, which is what I anticipated upon joining. I feel that it only gives brief information that has not been very helpful to me thus far.
I hope either I will begin receiving more emails from this professional mailing list or I hope to find a list that will be to me and the MRP. So far, I am not satisfied with the number of emails I that have been sent to me. I also think the emails that I have received are brief, vague, and sometimes confusing. There were a few instances, however, that posts were useful for my MRP. I did like the fact that links were provided in posts so that I could read additional information about specific issues. I wanted to become an active participant with the mailing list, but I remained a lurker because I did not feel confident and comfortable enough to post an email to the list. Hopefully in the near future I can fulfill a more active role in my membership.